When I wake up, most people have finished their day. They can already think of the moment they will get home and proudly say, that’s it for the day ! or at least , that it has been a long one. They can say they have got something done, whether they enjoyed it or not. At that same moment, while looking at the sun reaching out for the horizon, I.. Read More
» J’ai une Fibromyalgie, tu sais, la maladie dont souffre Lady Gaga ! »
Je n’arrive pas à concevoir que des millions de personnes à travers le monde venant d’horizons, de cultures et de croyances différentes, souffrent des mêmes symptomes, du même « mal de vivre » et que l’on continue à être vus comme des malades imaginaires auquel il ne manque qu’un peu de volonté et d’exercice physique.
Staying alive
As long as I remember, I have been depressed. Or maybe it is my depression telling me so. I used to think that it would eventually go away but now I definitely don’t think so. Some would say it’s pessimistic or even why I can’t get better. I call it being realistic and conscious of my own limitations. I used to look for reasons to be depressed and overtime, I.. Read More
It’s not right but it’s okay
It is no secret that my secret is that I have Fibromyalgia. I am living with an invisible, chronic illness that is beating me up while pretending otherwise. To the eyes of people, I am too young, too lively, too good looking or even too faithful to be sick (I know, I’ve heard it all). Therefore, I can do nothing else but pretend to be okay when I’m around them. Why?.. Read More
You’re in pain … So what ?
Did suffering from chronic pain made me have less or more empathy toward other people’s pain ? This question is definitely not an easy one. Not easy to answer nor even to ask. We already know that one of the two options isn’t easy to admit but I think that it is crucial to try to answer this question. So let’s talk about my personal experience, on a first person basis to.. Read More
Did you say flare ? I heard care
When diagnosed with Fibromyalgia last year, I didn’t know much about the sickness itself but I had a clue about what « chronic illness » meant. As far as I could remember, it meant that no insurance would actually pay for my medical fees and that I probably wouldn’t be able to play outside with my friends whenever I wanted. That was twenty years ago and throughout the years, I have learned.. Read More
The Shepherd and the Wolf
On many occasions, I talked about the inconvenience of attending family reunions and social events. (Blame it on #Fibromyalgia, Girls! They wanna have fun or Here comes the bride … ) Okay let’s face it; it represents 90% of what I’m talking about or should I say, complaining about. It is hard to confront the people you love the most (and probably hide the most from too), when your energy level is at a new.. Read More
Blame it on #Fibromyalgia
Remember the decision I made about not talking to close ones about my illness ? I never made the presumptuous assumption that this decision wouldn’t bite me in the a** at some point, but to be honest I didn’t think that would happen so quickly. I naively thought that I would have enough time to figure out how to deal with holidays, funerals, family gatherings and birthdays without becoming a.. Read More
You’re not a blogger until someone says you are!
Since the beginning of this adventure called « blogging about what I don’t know yet », I did not think that real people might actually be interested in what I have to say. It was more of a way to exorcise my internal pain and learn to put words on How I feel. An e-journal that is published online but still not interesting enough to be read by others. To be honest,.. Read More
Should we break the internet to talk about #Fibromyalgia ?
When I first started doing research about fibromyalgia I found myself engaged in a disturbing infinite loop. How can I be so disappointed that so few people (including health professionals) know about this condition when I, myself, only knew it existed the day I have been given an exclusion diagnosis. Though you do imagine my surprise when I first googled fibromyalgia… Not only it is real but millions of people.. Read More